GDPR and Research

Information for Participants

As an NHS organisation we use personally identifiable information to conduct research to improve health, care, and services. As a publicly funded organisation, we must ensure that it is in the public interest when we use personally identifiable information from people who have agreed to take part in research.

This means that when you agree to take part in a research study, we will use your data in the ways needed to conduct and analyse the research study. Your rights to access, change or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from the study, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible.

More information around the personal data processed and collected by CNTW as a Trust can be found here.

Information for Researchers
The General Data Protection Regulation (GDPR) came into force on 25th May 2018. It is designed to enable individuals to better control their personal data. The Health Research Authority (HRA) has published guidance about research and the general use of patient information, which can be found here.

In CNTW we have developed the following resources to help you ensure that your project documentation and processes are in line with the GDPR and Data Protection Act:

See our Data Processing Flowchart here.
See our GDPR and Data Protection Guidance for Researchers here.

If you have any queries, please email [email protected]